From Childhood to College: One Patient’s Story Living With Type 1 Diabetes

Madeline VanOrman • March 20, 2026

TL;DR

Madeline, a type 1 warrior, shares what it has been like to live with type 1 diabetes for 11 years, from being diagnosed at age 9 to managing diabetes independently in college. Her story reflects the emotional adjustment of childhood diagnosis, the stigma and misunderstandings surrounding T1D, and the challenges of balancing classes, friendships, and daily diabetes care as a young adult. Along the way, she has found support from her mom, friends, sorority sisters, and her growing interest in the medical field.

What It Feels Like to Be Diagnosed with T1D as a Child

 

When I was first diagnosed as a type 1 diabetic at the age of nine, I was scared. Scared of being treated differently. Scared of not knowing how this would change my future. It was a tough adjustment: knowing what life was like before and knowing how different it was now. At nine, your only worry should be making friends and listening to your parents and teachers. Now, I had additional concerns about things that I barely understood. I was even hard on myself because I just wanted to be normal. I used to be the one to get scared every time we went in for flu shots, now I had to get at least three shots a day.

A young girl wearing a blue polo shirt is standing in front of a door with her hands on her hips.

The Emotional Impact and Family Support

As if that wasn’t enough, there was a stigma around being type 1 diabetic because no one knew it is an autoimmune disease, unlike type 2 diabetes. Most of all, I dreaded birthdays. Whenever birthday donuts were passed around the class, I was never allowed to have one. That was when the teasing would start, reminding me of how different I was. The late-night talks with my mom started and from then on, she became my therapist. One of the biggest positives I’ve gotten from diabetes is my stronger bond with my mom. I also enjoyed getting a phone at a young age in order to text my mom my blood sugars from school. Even with her help, I still felt alone, because I was the only one in my school with type one diabetes.


Where I Am Today

I’m in college now, living on my own and figuring out how to balance classes, friends, and the everyday reality of managing diabetes without the structure I had growing up. Some days I’m on top of everything, and other days I’m reminded pretty quickly that I am definitely not the perfect diabetic. College makes it easy to forget to restock pump supplies, to ignore alarms during lectures, or to go low at the most inconvenient times. It doesn’t stop me from doing anything, but it does make things a little complicated at times, and I’ve learned to work around that.


A cheerleader for the tigers is holding pom poms

Finding Community and Support

Outside of school, a lot of my life revolves around my friends and my sorority, Kappa Kappa Gamma. Between chapter events, late‑night study sessions, and just hanging out, I’ve found a group of people who make campus feel like home. Diabetes is still there in the background, usually in the form of a pump alarm going off at the worst moment, but my friends barely bat an eye at it anymore. Alongside all that, I’ve spent the past few years in research labs, in hospitals, and even abroad, getting a closer look at the medical world I’ve always been curious about.


Taking Life with Type 1 Diabetes One Step at a Time

Right now, I’m taking things one semester at a time, figuring out what comes next, and learning how to manage all of it - college, life, and diabetes - at the same time.


About the Author

I’m Madeline VanOrman, a patient of the Barbara Davis Center and former CDF Advocate. I’ve had type 1 diabetes for 11 years, and it’s still part of my everyday life, just in a different way than when I first was diagnosed.


T1D camper Mia and her friend at camp with matching blood sugar levels on their phones
By Lauren Behm, Parent of T1D Camper, Mia May 4, 2026
Learn how overnight diabetes camp helps children with type 1 diabetes build confidence, independence, friendships, and lifelong support.
A small vial of insulin and other diabetes treatment tools on a table.
By Dr. Paul Wadwa, MD April 24, 2026
Learn the key differences between type 1 and type 2 diabetes, including causes, symptoms, diagnosis, and treatment. Understand how to recognize misdiagnosis.
A woman is doing a split with the words if i can just inspire one person
By Sasha Amiscaray April 15, 2026
TL;DR After 15 years of living with type 1 diabetes, Sasha shares her journey from diagnosis and denial to acceptance, advocacy, and a career in healthcare. Through challenges like fear of injections, managing diabetes as an athlete, and navigating school and college, she discovered strength, community, and purpose. Her story shows that while diabetes is difficult, it can also shape identity, open doors, and lead to meaningful connections and opportunities.
A black and white photo of a person with an insulin pump on their stomach
By Dr. Holly O'Donnell April 3, 2026
Type 1 diabetes affects mental health in youth and families. Learn about risks like depression, anxiety, and distress, plus support options and when to seek help.
A young boy in a white sweater is standing next to a cabinet.
By R. Paul Wadwa, MD, Professor of Pediatrics at the BDC April 2, 2026
Type 1 diabetes is often misdiagnosed as flu, UTI, or viral illness. Learn key symptoms, DKA warning signs, and when to ask your doctor for testing to avoid delays.
Author Wyatt Adams and his grandmother reading his book North of Normal
By Wyatt Adams March 30, 2026
A grandson shares his and his grandmother's journeys with type 1 diabetes, revealing how care, technology, and support have changed across generations.
Young girl with T1D in hospital gown and room
By Aaron Rea, Physician and Parent of a T1D March 30, 2026
A physician and father shares his daughter’s 15-year journey with type 1 diabetes, from diagnosis to independence, highlighting resilience, care, and support.
A mother and son next to a list of type 1 diabetes  symptoms
By CDF Staff March 23, 2026
Learn the early symptoms of type 1 diabetes and why recognizing them quickly matters. Knowing warning signs can help prevent serious complications and save lives.
A cartoon illustration of a white monster with horns waving.
By Cheryl Lebsock March 18, 2026
A parent shares how naming type 1 diabetes “Frank” and reframing it helped protect their child’s identity, improve mental health, and strengthen family support.