Type 1 Diabetes and Mental Health

May 21, 2020

May is Mental Health Awareness Month. If you need help, contact Colorado Crisis Services by texting ‘TALK’ to 38255 or calling 1-844-493-8255.


by the Pediatric Behavioral Health Team at Barbara Davis Center: Shideh Majidi, MD; Ellen Fay-Itzkowitz, LCSW; Katherine Josey, LCSW; Jennifer Tilden, LCSW

Type 1 Diabetes is a constant, 24/7 condition, that can result in variety of feelings for those with diabetes and their caregivers. Individuals will experience feelings of anger, sadness, worry, frustration and can feel overwhelmed in the days, weeks, months and years following a T1D diagnosis. In fact, those who have T1D are at higher risk of mental health issues, including depression and anxiety. You are not alone when you have these feelings, and the Barbara Davis Center for Diabetes is prepared to help. Some mental health conditions that are seen in T1D include:

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Depression

Depression is seen in 15-20% of youth with T1D, about double the rate of those without diabetes. Depression can include feelings of sadness, increased irritability, decreased energy or desire to do anything, difficulty with eating and/or sleeping, and difficulty with concentration. It is not uncommon to have feelings like this after a diabetes diagnosis, but if the feelings do not resolve after a few months, or if they present later on, you may have depression. Depression is treated similarly in those with type 1 diabetes as those without type 1 diabetes. Barbara Davis Center Pediatric clinic conducts annual screening for depression and suicidal ideation, as recommended by the American Diabetes Association. Your behavioral health team at Barbara Davis Center can help with identifying these symptoms and linking you with the right people to see for further evaluation and treatment.

Suicidal Ideation

Thoughts of dying or of killing oneself is seen in those with type 1 diabetes at similar or slightly increased rates compared to those without type 1 diabetes. It is important to recognize these thoughts and seek out help. If you or someone you know has thoughts of suicide, contact the Suicide Prevention Help Line at 1-80-273-8255. If urgent concern for suicide arises, call 911 or go the nearest Emergency Room.

Eating Disorders

Having type 1 diabetes means you have to think about food more often that you normally would. Although T1D management has advanced, giving individuals with T1D a little more control over what they eat and when they eat it, individuals with T1D still have to eat at times when they are not hungry (to treat lows) and sometimes they are deprived from eating when they are hungry (like when blood glucose levels are elevated and parents tell them to wait or make a different, lower carb choice). Feelings related to body weight and shape are complex too, especially during puberty. These complex food, insulin, and body issues can lead to eating disorders including anorexia, bulimia, or a diabetes-specific eating disorder referred to as “diabulimia.” Diabulimia is when an individual decreases or omits necessary insulin, ultimately leading to unhealthy weight loss. This is a dangerous behavior and if you, a family member or a friend are concerned they may be struggling with an eating disorder, please do not be afraid to ask your team at the BDC for help.

Fear of Hypoglycemia

Some youth and caregivers worry about going low. Youth often worry about going low at school or in front of others and drawing attention to themselves, or going low somewhere they cannot treat the low. Caregivers often worry about their kid’s having lows overnight or at othertimes when no one is around who can help. Some concern about lows is appropriate, but sometimes the concern can lead to a level of anxiety that affects normal life or can lead to purposefully maintaining high blood sugars in order to prevent going low. If this sounds familiar, the team at Barbara Davis Center can help work through fear of hypoglycemia or identify the right people to see for further evaluation and treatment.

Needle-related Anxiety

It is not uncommon for youth or caregivers to have a fear of needles, whether it is injections, finger pokes, sensors or pump set changes. Unfortunately, diabetes requires the use of needles for blood glucose monitoring and insulin administration. It is important to recognize fear of needles and address it with your diabetes team, as the fear can continue to increase the longer it goes unrecognized and habits or rituals related to injections can develop that are difficult to reverse (such as using the same sites repeatedly causing hypertrophy, or avoiding injections completely). The behavioral health team at Barbara Davis Center have tools and tips to help work through needle related anxiety.

Just like diabetes, mental health issues are genetically-based conditions that require evaluation and treatment by a health care professional. With any of the above mental health issues, treatments are available and the behavioral health team at Barbara Davis Center is here to help recognize mental health issues and provide appropriate referrals to therapists and counselors who can work with us to help with treatment.

Do not hesitate to bring up concerns you have at your next visit or call and ask to speak directly with one of our behavioral health specialists at (303) 724-2323.

A poster for mental health help during covid-19

Hormonal methods of contraception include birth control pills (combined oral-contraceptive pills and progestin-only pills), skin patches, vaginal rings, Depo Medroxyprogesterone acetate injections (“Depo shots”), an implant in the arm, medicated IUD, and emergency contraception. Most of these methods are “generally used methods” by the World Health Organization in women with diabetes. However, some should be used with caution and only with the approval of a health care provider in women with diabetes for more than 20 years and/or with a history of advanced vascular diseases (such as in the eyes, kidneys, or nerves to the feet), and these include the combined oral contraceptive pills and Depo shots. In addition, some of these methods should not be used in women who smoke as they can increase the risk for dangerous blood clots.

Some hormonal methods require that the user follow instructions carefully in order to provide protection against an unplanned pregnancy (such as the pills, patches, vaginal rings, and Depo shots). For example, skipping pills or taking them later on the same day can result in a pregnancy. Other methods are less reliant on the user as they are inserted in a health care provider’s office into the skin (arm implant) or uterus (IUDs) and thus provide protection against pregnancy for 3-10 years, depending on the device, without having to do something daily or monthly.

None of the hormonal contraceptive methods protect against STDs, so one should consider that in some cases two methods of contraception would be required (for example, IUD and condom use).

The decision to use contraception is a personal one. It is important to consider the health benefits and risks of each method as they relate to a woman’s individual needs. One may also need to consider cost, medical contraindications (reasons why one cannot use a particular method[s]), cultural beliefs, side effects, access to obtaining the preferred method, and future desire to conceive. About 45% of pregnancies in the United States are unplanned. Unplanned pregnancies in women with diabetes are generally associated with worse health outcomes for mothers and their babies.

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Depending on the contraceptive methods used, contraception can help reduce the rates of unplanned pregnancies, STDs, and symptoms of certain medical conditions. Thus, there are many reasons why a woman of reproductive age (sexually active or not) should consider whether contraceptive therapy is right for her.

A group of people are posing for a picture in a living room.
June 14, 2024
By: Stacy Robinson With Father’s Day just around the corner, I am thinking about my dad even more than I usually do. He was a special man who lived a remarkable, impactful life right up until the day he passed away at the age of 98, a little over a year and a half ago. He was a decorated World War II veteran, a bookie in Vegas during the Rat Pack era who married the love of his life between rounds of a prize fight, and who later went on to become a successful entrepreneur. Most importantly though, he was a devoted husband, father and grandfather.
A man and a woman are posing for a picture in a parking lot.
June 14, 2024
Author: Lindsay Klatt Being the dad of two daughters already has its highs and lows; having one of them (who admittedly was already a little feisty) diagnosed with type 1 diabetes makes him a saint. My wonderful dad navigated these challenges with such love and grace. As we approach Father’s Day and as I recently celebrated my 27th Diaversary, I reflect on the things he deserves to be thanked for. There are too many to count and no way to properly express gratitude for the additional struggles type 1 fathers face, but here’s a toast to a few of the things etched on my heart: Cheers to my dad who, when I was diagnosed, had the best balance of acknowledging the sadness of the event and being encouraging for the future. It made me feel seen to see him upset, and to see him determined. He has always maintained that balance I am so grateful for.
A person is riding a go kart on a track.
March 8, 2024
Hi, my name is Dylan Archer and I have type 1 diabetes, and I LOVE to race! Type 1 is NOT stopping me! When I was 5 years old, way back in 2013, Dad picked me up from school, and (as usual) we started talking about racing. Dad started racing when he was 16, and we often talked about how much fun it was. Well, this conversation ended a bit differently because Dad asked if I was ready! I got my first go-kart that summer, and in no time, I was hooked! It was a little scary at first, but once I started to go fast I sure had fun! For the first couple of years of racing, I was reaching for the stars. That first trophy made me feel so good, and I knew that I had to get more! But then in 2016, I wasn’t feeling so good, so Mom took me to the doctor. Turns out I had type 1 diabetes. Wow, I wasn’t ready for that news (and neither was my family). It turned my whole world upside down. We had to figure out a way to manage this unexpected, scary thing that was happening to me.
Two girl scouts are standing next to each other in a room filled with boxes.
January 9, 2024
By: Sarah Hathaway On October 10th, 2022 I earned my Life rank in Scouts BSA and began focusing on what was once a faraway goal: Eagle Scout. I had some ideas for my project and I knew I wanted to do something that means a lot to me and benefits as many people as possible; this led me to think about the Children’s Diabetes Foundation. I am an advocate for the organization and I know CDF has made an impact on others just like me so I was hoping I could come up with a plan to help families affected by T1D. I reached out to the Community Engagement Manager, Sydney. I believe that she was really confused and might not have heard about Eagle Projects before so she asked all about what I was looking to do and we talked about different options for projects. I asked her about the newly diagnosed onset bags for people with T1D that I remembered receiving from CDF when I was diagnosed in 2021. This was last June and we were both volunteering at the T1D Strong soccer camp. As camp went on we talked a lot and I offered some more ideas and the plan started coming together. I started to talk to diabetes-related companies to get additional informational materials to put in the bags. I got in contact with Dino from Omnipod and he was very helpful. He sent me a lot of informational packets, games, and even fake Omnipods for new patients to try before spending a lot of money on new technology. Unfortunately, other companies and organizations were not as responsive but there was already a lot of helpful stuff from CDF to go into the bags. I also did a fundraiser before my Eagle Project workday. I set a goal to raise money to put a restaurant gift card in each new onset bag because I remember going to lunch together as a family when I was discharged from the hospital. I knew that families could use that gift card and not have to worry about where to go. As I was fundraising, I found out that the Scouts BSA district person that I was working with, Pat, was associated with KFC. Pat put me in contact with the Regional Manager of KFC and through this contact, KFC donated 100 gift cards for the bags. Finally, on November 11th, 2023, I was able to carry out my project. I had been planning this for months and I was both nervous and excited. Sydney was kind enough to be at the CDF office on a day that she does not normally work and was so supportive. We set up the office to pack the bags and then people started to show up to help. We were able to do the project and even though we were only going to make 100 bags, the group ended up filling about 150 bags in less than an hour! Sydney and I then did a community information talk to over 30 people about our experiences with T1D and answered a lot of questions. It was awesome to look out in the audience at my Scout friends, neighbors, teachers, and family.
A young woman wearing a red shirt that says uchealth is standing in a field.
January 9, 2024
My name is Gracie Lambrecht and I have been living with type 1 diabetes for 12 of the 16 years of my life. Even though I lived for a few years T1D-less, I can’t remember a life without it and while I wish I could say it’s been a walk in the park to deal with, it most definitely has not. As a kid, the burden of pricking fingers, changing pump sites, and treating low blood sugars at midnight was not something that I was really tasked with handling. My parents took the responsibility of my diabetes care so I could be as “normal” of a kid as I could be. As I got older, I began taking more responsibility for my care and now, as a junior in high school, I completely manage my diabetes on my own. As an extremely active high school student, finding time to do anything outside of class, mock trials, and competitive soccer is pretty difficult. Starting off, I want to say that no matter the final exam you have or the big game you might have coming up, your health ALWAYS comes first. Never procrastinate or ignore the needs of your T1D health for any reason and always prioritize taking care of yourself over everything else. While balancing school, sports, and T1D can be stressful at times, taking the right precautions and handling your diabetes care in the moment can make it easily manageable. I want to share, specifically how I manage playing soccer with type 1 diabetes. I have been playing soccer since I was 4 years old. I actually started playing soccer just before I was diagnosed with T1D. I don’t remember much of that time in my life, but my mom knew something was wrong when I would only play for 5 minutes before begging to come off the field for water. After being diagnosed, I stopped playing soccer for a few years in order to better understand how to manage my T1D. After those years, I joined a club soccer team and haven’t stopped playing since. I currently play for the Colorado Rapids North ECNL- Regional League team. On this team, I have the opportunity to play against some of the toughest competition in the nation and the opportunity to be scouted by college soccer coaches. Most games that I play with this team involve at least an hour of travel when we play in Colorado, but we also travel out of the state to Utah, North Carolina, Florida, and other places. A usual week of training consists of: -(3) 1.5 hour outdoor trainings -(2+) 90 minute games -Occasional strength training In order to keep my blood sugars in a target range for playing (I feel most comfortable with my BG between 100-150), I not only make sure that I am eating the right foods in the right amounts, but I also utilize the exercise mode function on my Tandem (T-Slim) insulin pump. “Exercise mode” is a function on my pump that keeps my BG around 150 mg/dl by suspending insulin delivery when my sugars start to drop below 150. To go into further detail, for me, a typical game day looks like this (depending on the time of the game): -3 hours before: I eat a large meal (with a good amount of protein and carbs). My favorite pregame lunch is a Turkey and Cheese sandwich with a small bag of chips and a cup of chocolate milk. -1.5 hours before (30 minutes before warmups): I check my BG via my Dexcom G6 Continuous Glucose Monitor and if: Under 100: treat with 15 grams of sugar (I usually drink a 15g Apple Juice box) and go on Exercise mode for 3 hours. 100-150: Have a 15-20 gram snack (I would usually eat a granola bar) and go on exercise mode for 3 hours. Over 150: Go on exercise mode for 3 hours. -10-20 minutes after the game: I check BG and have a snack/meal with protein to replenish nutrients (I like to drink a Nesquik Chocolate milk right after the game to hold me over until I can get a meal). This plan is also very similar to how I prepare for a normal weeknight training session (minus eating a large meal 3 hours before).
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July 17, 2023
Eli Lilly has a ripple effect on making insulin more cost effective for T1Ds. Every day patients make critical decisions in rationing their insulin and we are hopeful this will help stop families from having to make such sacrifices. Thank you to Eli Lilly, Novo Nordisk, Sanofi! Watch the interview with Dr. Satish Garg: Diabetes doctor says it’s “high time” insulin prices are lowered Read more here:
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July 17, 2023
Congratulations Dr. Satish Garg for being named the winner of the ATTD Lilly 2023 Insulin Centennial Award. This prestigious award is given to doctors who have made significant contributions to diabetes treatment. Dr. Garg has been an international leader for insulin therapy in both type 1 and type 2 diabetes, with expertise in clinical trials and methods of insulin delivery. Dr. Garg joined the BDC in 1988 and founded the adult clinic as senior faculty in 1992. He has also served as the director of the ATDC Keystone Diabetes conference since 2005
A person is being tested for diabetes by a doctor.
November 2, 2022
It’s important to know that Type 1 and Type 2 diabetes are extremely different diseases . While they both deal with insulin and the body, their causes and treatments are very different.nn Type 1 diabetics CANNOT make their own insulin. Type 1 is a genetic, auto-immune disease. It is thought that type 1 is present in the body’s genetic code and then it presents at various times. Basically meaning, it’s lying there in wait and decides to show itself at various ages. The majority of type 1 patients get diagnosed in their childhood and when they are adolescents, however it can happen later in life as an adult. The body begins attacking its own pancreatic cells, specifically the islet cells that make insulin in our bodies. It attacks these cells so aggressively that the patient stops being able to make any insulin whatsoever. Insulin processes the carbohydrates we eat and feeds our cells. If we don’t feed our cells, we have too much sugar in our system which wreaks havoc on everything from your kidneys to your eyes to the mood you are in. You cannot live (for long) without insulin. Only 100 years ago, a person diagnosed with type 1 diabetes would be lucky to stay alive for two more years and that life would be oneof misery and starvation. This auto-immune attack on the pancreas cannot be prevented. If it’s in the genetic cards for you, you can’t stop it. Type 1 cannot be caused by an unhealthy diet, eating too much sugar, obesity or lifestyle issues. It cannot be cured (yet!) and patients will live with the disease for the rest of their lives. Thankfully, we now have treatments and technology to manage type 1 diabetes but that is what it is-a lifelong management. Patients take synthetic insulin via injections or by using an insulin pump and do all of the work and insulin calculations a normal pancreas does naturally in the body. They also constantly monitor their blood sugar numbers, trying to stay within a normal range. But when we say we manage it, we mean it is at the top of our minds every minute of every day. Tons of different things affect blood sugar. Food is the biggest one, but blood sugar is also affected by exercise, illness, sleep, co-occurring conditions, menstruation, stress, medication, altitude, weather… and the list goes on. Managing all of these things and injecting insulin for the various situations is a full time, exhausting job. And even the type 1 patients who have a lifetime of good control will feel the affects of the disease on their body and through various complications. Only 5% of the total diabetes population has type 1 diabetes, although the number of newly diagnosed type 1 patients is increasing each year.
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Diane Keaton Honored at the 36th Carousel of Hope Ball Event Featured Emcee Howie Mandel and Performers John Legend, Andy Grammer, and Deborah Cox